субота, 9 липня 2016 р.

When parents' love hurts: a rare disease of the newborn

This baby, like all children, newly born, in need of affection parents. But mom and dad can not take her in his arms and hug because of fears that it will cause skin burns.

 When parents' love hurts: a rare disease of the newborn  epidermolysis bullosa

Little Lexi-May Bravender UK suffers from epidermolysis bullosa   ( pemphigus newborns ) - An incurable disease that causes rapid skin damage from any external stimuli. Feet constantly bandaged the girl, the child should be carefully wrap in a cloth to prevent scratching and whining constantly forming scars. Finally, the girl receives regular doses of morphine each time taking a bath.

 When parents' love hurts: a rare disease of the newborn  epidermolysis bullosa

  Epidermolysis bullosa   - One of the rare hereditary diseases from which the world suffers from no more than 500 thousand people. However, the disease is not always seen as tough as it does with Lexi-May. The child is the victim of the most severe forms of the disease, and the girl's wounds appear not only on the skin, but also in the mouth, throat, and even the eyes.

 When parents' love hurts: a rare disease of the newborn  epidermolysis bullosa

Day after day, parents must carefully handle the baby's skin with special creams, cleansing scars. At birth, Lexi-May did not have any skin on the feet, and the doctors did not know what caused this strange defect. First, change the color of steps taken for the birth marks, then for the infection. Only after all of the baby's skin began to bubble because of changing diapers, doctors realize they are dealing with pemphigus newborns . Unfortunately, the treatment of the disease from a purely symptomatic, and no one knows what will continue to develop Lexi-May. (READ MORE)

 When parents' love hurts: a rare disease of the newborn  epidermolysis bullosa



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