Every day - Christmas

In 15-year-old Paige Bedman a rare brain disease. In the world of the disease was found in 12 people. At any hour of the day and Paige could die. She knows it and keeps very courageously. And the girl's parents are afraid that their child will not live until December 25, when all Western countries will celebrate Christmas. And so now every day for Paige turns to the Christmas holiday.

In the autumn of this year, the state of health of the girl seriously deteriorated. November 1 Rachel and Lee Badman decorate your house Christmas lights, installed an artificial Christmas tree and hung toys. For Paige Christmas - the most important and favorite holiday. And now he comes to her every day. After all, every new 24 hours of life for girls - a real gift.

Due to illness Page had to sleep 19 hours a day. But the remaining 5:00 family celebrates struggling. Girl welcomes guests and opens presents. "Many people have asked us about whether we are ready for Christmas - says the girl's mother. - Of course, getting ready, but our main question is whether Page is alive to this day. There is no other Christmas present we do not need. The daughter went through hell, but now she always feels happy. "

The girl suffers from a very rare genetic disease It is known in medicine as Pitt-Hopkins syndrome . Due to illness the brain RW Page steadily declining, leading to difficulties in breathing. Worldwide today confirmed only 12 such cases. Doctors suggest that patients with more, just not all were able to make a diagnosis. The disease is fatal, there is no cure.

Paige can not eat and drink on their own, she does not talk and no walks. Periodically, she had fits of epilepsy. The doctors warned the parents that one of these attacks and will be the cause of her death. But while the girl is still alive, she tries to get pleasure from life. She likes good music and films. A musical Mamma Mia! I listened to, perhaps, a hundred times already.

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