Imagine a parent that is not something that is forbidden to caress and undead, but even to touch your own baby. It is this bitter fate had the mom and dad of two years Tripp Roth, a resident of the State of Louise's Ponchatula. The boy suffers from a form polidisplasticheskoy epidermolysis bullosa - A hereditary disease in which the skin is covered with painful red blisters and sores.
Doctors rarely have to deal with this disease. Those who've encountered with it, sometimes called epidermolysis bullosa "the worst disease of all possible". Disease deprives the human protein that is required for connecting the skin layers. This means that any movement can cause damage and scarring. Moreover, not only on the skin surface, but also on the lids, in the upper part of the esophagus and even mouth.
The disease has deprived small Tripp vision and speech. Unfortunately, doctors do not have any medicine against the disease, and it can only recommend that the boy's mother to keep him in tight bandages to prevent skin damage. The boy suffers from the rarest and most severe form epidermolysis bullosa That affects less than one percent of patients with this disease.
The doctors did not believe that the child will be able to reach more than a year, but for two Tripp, and he was able to refute all expectations. Of course, the boy is alive only thanks to the heroic efforts of his mother. "It is particularly scary when he hears the word" bath "- this is a very painful procedure for Tripp - says woman. - My husband and I even came up with another name for it, but the son guessed. He's very smart. It can not see, but just feels my anxiety. Tripp taught me true love, patience, respect, and self-sacrifice. I realized how much happiness and joy brings motherhood in women's lives. "
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